Breast cancer

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h/t David

From This Week with George Stephanopoulos, Republican Rep. Marsha Blackburn and Democratic Rep. Debbie Wasserman Schultz get into one of those discussions over this week's breast screening recommendations in which the Republican simply constructs an alternate reality:

BLACKBURN: ... Debbie is right when she says they forgot about people. Indeed, they did. But we have to realize, this group that made this recommendation, this isn't some outside group. This is a part of HHS. And when you look at the...

WASSERMAN SCHULTZ: It's an independent group. That is not accurate.

BLACKBURN: ... 118 -- when you look at the...

WASSERMAN SCHULTZ: It is not a part of HHS.

BLACKBURN: No, it is a part of HHS.

WASSERMAN SCHULTZ: No, it is not.

BLACKBURN: And when you look at what is going to happen with these 118 new bureaucracies with 62 directives that are given by the health choices commissioner on what insurance can be offered in this country after 2013 and what is going to be paid, you know that this is the bureaucrat in the exam room. This is how it's going to happen.

WASSERMAN SCHULTZ: Marsha...

BLACKBURN: And this is the first step.

WASSERMAN SCHULTZ: Marsha, there's an insurance company bureaucrat in the -- in between the patient and her doctor right now.

BLACKBURN: This is breast cancer. Well, and people don't like that, and we need to get rid of...

(CROSSTALK)

WASSERMAN SCHULTZ: And your bill -- your -- your alternative...

(CROSSTALK)

BLACKBURN: We need to get rid of all of those insurance bureaucrats.

WASSERMAN SCHULTZ: ... does nothing to...

(CROSSTALK)

STEPHANOPOULOS: I'm going to have to -- I'm going to have to stop this right now.

Yes, George. Because your job is to provide a showcase. You're not supposed to confront the guests when they make things up.



This New York Times article gives the same scary media narrative repeated everywhere else in the past few days:

Despite new recommendations that most women start breast screening at 50 rather than 40, many doctors said Tuesday that they were simply not ready to make such a drastic change.

“It’s kind of hard to suggest that we should stop examining our patients and screening them,” said Dr. Annekathryn Goodman, director of the fellowship program in gynecological oncology at Massachusetts General Hospital. “I would be cautious about changing a practice that seems to work.”

The recommendations, issued Monday by a federal advisory panel, reversed widely promoted guidelines and were intended to reduce overtreatment. The panel said the benefits of screening women in their 40s — saving one life for every 1,904 women screened for 10 years — were outweighed by the potential for unnecessary tests and treatment, and the accompanying anxiety. Women considered at high risk should continue to have early screening, the panel said.

So I'm reading all these stories and saying, "Where's the data about the risk from radiation?"

I finally found this important (and missing) piece of the puzzle in the San Francisco Chronicle:

Radiation causes 1 death for every 2,000 women screened annually starting at age 40, according to a study published in 2005 in the British Journal of Cancer. Another study shows that each mammogram increases the risk of breast cancer by 2 percent. Mammography also saves women's lives, so that's why it's a trade-off.

Here's some more info from Respectful Insolence, a medical research blog.

Got that? Statistically, some women have approximately as much chance of getting breast cancer from a mammogram as they have of it saving their lives. That's why it's considered a policy wash.

Yes, you might be one of those rare women saved by early detection. But you might also be someone who develops breast cancer from the yearly radiation exposure.

By the way, the policy change recommendation doesn't apply to women with symptoms. It's for screening mammograms only, not the diagnostic kind.

UPDATE: Sebelius tells women to "ignore" the recommendation. How about we give women all the information - and let them decide?


Mike's Blog Roundup

Kiko's House: Breast cancer bombshell lands in the middle of the health care debate

The Pump Handle: Swine flu and bird flu and lessons to be learned

Ken Silverstein: Feds document crime spree by dictator's son: Why no action?

Private Buffoon: Writes letters...

The National Protrusion: Should terror suspects be tried in U.S courts? - The Henry "Mack Truck" Harvey Show

ANNALS OF JOURNALISM: Rush to judgement...Media, Money and Sun Myung Moon...and his paper says...and his editor says...The state of journalism in Nebraska...Gernelism...Newsweek taps Bush aide for Obama reporting... Rogue?...Balance...Ethics...Setoodeh and Teh Ghey...Typography...The 'Dean' writes...WashTimes against protectionism before they were for it...


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Countdown Goes To Free Clinic: 'Hard To Believe I Was In America'

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(h/t Heather at VideoCafe)

Rich Stockwell, senior producer at MSNBC's "Countdown", writes about his experiences at the free clinic funded by viewer contributions:

New Orleans, La. — - It happened as I watched a 50-something woman walk out, after spending several hours being attended to by volunteer doctors. "She's decided against treatment. A reasonable decision under the circumstances," the doctor tells us as she heads for the next patient. The president of the board of the National Association of Free Health Clinics tells me why: "It's stage four breast cancer, her body is filled with tumors." I don't know when that woman last saw a doctor. But I do know that if she had health insurance, the odds she would have seen a doctor long ago are much higher, and her chances for an earlier diagnosis and treatment would have been far greater.

After watching for hours as the patients moved through the clinic, it was hard to believe that I was in America.

Eighty-three percent of the patients they see are employed, they are not accepting other government help on a large scale, not "welfare queens" as some would like to have us believe. They are tax-paying, good, upstanding citizens who are trying to make it and give their kids a better life just like you and me.

Ninety percent of the patients who came through Saturday's clinic had two or more diagnoses.
Eighty-two percent had a life-threatening condition such as cardiovascular disease, diabetes, or hypertension. They are victims of a system built with corporate profits at its center, which long ago forgot the moral imperative that should drive us to show compassion to our fellow men and women.

Health reform is not about Democrats or Republicans or who can score political points for the next election, it's about people. It's about fairness and justice in a system that knows none. I'd defy even the most hardened capitalist-loving-conservative to do what I did on Saturday and continue to pretend that the system in place right now is working.

Countdown chose to highlight and raise money for the Association of Free Clinics because we knew the work they do is so vitally important and we wanted to show in real terms how great the need is. We invited several politicians to attend so they could see first hand how critical the situation is. All declined. Some explained that they talk with constituents all the time and know very well of the need for reform.

I have news for them, these people didn't need to speak. Their actions spoke far louder than any words. Having to get a check up and diagnosis at a free clinic because they have no other option tells you all you need to know. There are no words that can accurately describe the quiet desperation on the faces of the patients. Every single one I spoke to, and every one I heard talking with doctors, expressed their gratitude for the event and wished that they were held more often.


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Howard Dean on Health-Care Bill: 'This Is Real Reform'

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Look, I want single-payer, too. But this bill has a lot of things in it that will quickly offer substantial relief, and I'm not joining the wholesale condemnation. Even Howard Dean called it "real reform" tonight and said he'd vote for it.

There's some good things and some bad things. Actually, a lot of good - and you won't have to wait more than a few months for relief.

The bill keeps kids on their parents' insurance until age 27, there's a temporary insurance pool until the public option is operable, extension of COBRA benefits (still looking for details), steps to close the Medicare doughnut hole, a ban on lifetime coverage limits, and the end of rescissions, except in case of fraud. It also expands Medicaid.

The bill also adds a voluntary long-term care program (and if your parents have seen their insurance carriers crash and burn this year, you know what a blessing this will be). It also funds a temporary reinsurance program that subsidizes employers offering health benefits for retirees aged 55-64.

As Jane pointed out this morning, there's no requirement for generic versions of high-priced breast cancer drugs. In fact, the bill sweetens the pot for Big Pharma by extending patents on those drugs every time they make a minor change. (Like making an extended release formula.) Essentially, it's a monopoly in perpetuity. (And guess which netroots favorite voted for it? Rep. Patrick Murphy. He's got Big Pharma employing many, many voters in his district.)

Breast cancer survivors, organize! No one likes to be perceived as beating up on cancer patients.

Potentially bad: No Medicare+5. At first look, this means fewer savings - and thus, higher premiums. However, these rates will still be negotiated at a national level, and it does not preclude Medicare +5.

In a bill this complex and controversial, there are, of course, things that will make us swallow hard. From what I'm hearing so far, the subsidies are inadequate. As soon as I have concrete numbers, I'll put them up.

I'd say the subsidies are the single most productive focus for the netroots. Call your congress critter, tell him or her (or it) that the subsidies must be adequate - or else.

And if they say they have to respect the ceiling President Obama asked for, ask them why it doesn't bother them when they have to pay for wars - only health care. Tell them you will not pay more money for less coverage, that this is a deal-breaker for Democratic voters.

Send them a strong message.

UPDATE: Jamie at Intoxination cites Politico:

The House health care bill unveiled Thursday clocks in at 1,990 pages and about 400,000 words. With an estimated 10-year cost of $894 billion, that comes out to about $2.24 million per word.

I pulled out the calculator. How does this sound - $425.9 million per word? That's how much each of the 2,174 words in the authorization for the Iraq war has cost so far and the price keeps going up.


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First of all, if we had national health care, those who served wouldn't have to beg for help with medical bills. And it never ceases to amaze me that we'll throw billions of dollars to incompetent but politically-connected war profiteers, but we fight the claims of those who put their bodies at risk while in the service. Unbelievable:

TAMPA, Florida (CNN) -- For Rick Kelly, the first sign of cancer was a feeling of discomfort in his chest.

"My wife would hug me, and it became almost unbearable," he said. "I went to a doctor, and they sent me to the oncologist, and they did biopsies on both sides. And then I ended up with a double mastectomy."

Kelly is one of 20 retired U.S. Marines or sons of Marines who once lived at Camp Lejeune, North Carolina, and who are now suffering from breast cancer, a disease that strikes about one man for every 100 women who get it. Each of the seven men CNN interviewed for this report has had part of his chest removed as part of his treatment, along with chemotherapy, radiation or both.

All 20 fear that water contaminated with high levels of toxic chemicals may have caused their illnesses, but the Marine Corps says no link has been found between the contamination and their diseases. Without that link, the men are denied treatment by the Department of Veterans Affairs, which says it can't treat them for a condition that hasn't been shown to have been "service-related."

Kelly was diagnosed with breast cancer in 1998, 16 years after he served at Camp Lejeune. Now a single father of a 7-year-old boy and without health insurance, he filed a claim with the VA to help pay his medical bills.

Kelly said his VA representative told him, "It's not the VA's problem, it's the Marine Corps' problem."

And Peter Devereaux, who was stationed at Camp Lejeune in the early 1980s, was told in writing that his breast cancer "neither occurred in nor was caused by service."

But Kelly, Devereaux and other stricken men CNN interviewed say the Marine Corps knew about the contamination in tap water years before it shut down tainted wells in the mid-1980s. Now they want the service to acknowledge that the water from those wells made them sick, which could make them eligible for VA benefits.

"They want it to go away, and it kind of just makes you sick with disgust," Devereaux said.

The men with breast cancer are among about 1,600 retired Marines and Camp Lejeune residents who have filed claims against the federal government. According to congressional investigators, they are seeking nearly $34 billion in compensation for health problems they say stemmed from drinking water at the base that was contaminated with several toxic chemicals, including some the federal government has classified as known or potential cancer-causing agents.


This is what happens when you don't allow real competition into the picture. It's also what happens when you have a for-profit healthcare system:

Executives of three of the nation's largest health insurers told federal lawmakers in Washington on Tuesday that they would continue canceling medical coverage for some sick policyholders, despite withering criticism from Republican and Democratic members of Congress who decried the practice as unfair and abusive.

The hearing on the controversial action known as rescission, which has left thousands of Americans burdened with costly medical bills despite paying insurance premiums, began a day after President Obama outlined his proposals for revamping the nation's healthcare system.

An investigation by the House Subcommittee on Oversight and Investigations showed that health insurers WellPoint Inc., UnitedHealth Group and Assurant Inc. canceled the coverage of more than 20,000 people, allowing the companies to avoid paying more than $300 million in medical claims over a five-year period.

It also found that policyholders with breast cancer, lymphoma and more than 1,000 other conditions were targeted for rescission and that employees were praised in performance reviews for terminating the policies of customers with expensive illnesses.

Isn't that lovely. Blue Cross is here for you!

"No one can defend, and I certainly cannot defend, the practice of canceling coverage after the fact," said Rep. Michael C. Burgess (R-Tex.), a member of the committee. "There is no acceptable minimum to denying coverage after the fact."

The executives -- Richard A. Collins, chief executive of UnitedHealth's Golden Rule Insurance Co.; Don Hamm, chief executive of Assurant Health and Brian Sassi, president of consumer business for WellPoint Inc., parent of Blue Cross of California -- were courteous and matter-of-fact in their testimony.

But they would not commit to limiting rescissions to only policyholders who intentionally lie or commit fraud to obtain coverage, a refusal that met with dismay from legislators on both sides of the political aisle.

Experts said it could undermine the industry's efforts to influence healthcare-overhaul plans working their way toward the White House.

"Talk about tone deaf," said Robert Laszewski, a former health insurance executive who now counsels companies as a consultant.


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(h/t David)

From Good Morning America: Fla. Congresswoman Pushes Cancer Legislation After Surviving Own Battle.

Rep. Debbie Wasserman Schultz, D-Fla., introduces new federal legislation today that calls for a national breast-cancer education campaign that targets women between the ages of 15 and 39. The bill holds special significance for the 42-year-old because she quietly and successfully battled breast cancer in the past year.

Schultz's Breast Cancer Education and Awareness Act focuses specifically on young women.

U.S. Rep. Debbie Wasserman Schultz reveals cancer battle.

In the past year, she underwent seven major surgeries, including a double mastectomy and reconstructive surgery, while balancing motherhood, Congress and her roles as a chief fundraiser for House Democrats and a political surrogate, first for Hillary Clinton and then for Barack Obama.

''I had a lot going on last year,'' she said with a laugh, sitting in the living room of the Capitol Hill town house she shares with two other members of Congress when she's in Washington. ``I'm a very focused, methodical person, and I wasn't going to let this beat me. I wasn't going to let it interfere with my life.''

.....

''It just pains me to know that younger women, because they don't know and because they're blown off by physicians many times, and because they squeeze their eyes shut and hope that it's nothing, that their death rate is much higher,'' she said.

Her bill calls for a national education campaign, aimed at informing young women about the risks and encouraging them to conduct routine self-exams.

Wasserman Schultz discovered a breast lump through a self-exam, two months after her first mammogram at 40. Although the cancer was detected at an early stage, she also learned that as an Ashkenazi Jew of Eastern European descent, she was at greater risk of carrying a gene mutation that makes Ashkenazi Jews predisposed to breast cancer and recurrance. She tested positive for this BRCA2 gene mutation, prompting her to have both breasts removed.

She was also at higher risk of ovarian cancer and had her ovaries removed -- the day after Election Day. Her final surgery was in December, almost a year after her diagnosis.

Because the cancer was caught so early, she didn't need chemotherapy or radiation but will take the cancer drug tamoxifen for five years.

She said she decided to keep her cancer private, concerned mostly that her young children (then 8-year-old twins and a 4-year-old daughter) would worry, particularly with a mother who was also constantly on the go. They knew she was undergoing surgery, but she didn't tell them the cause.

'I knew from my doctors that if I went through their recommended course of treatment that I would get through it and I'd be fine, that I could come out the other side and confidently tell my children, `Mommy's fine,' '' she said. She planned to tell them Saturday night.

She scheduled her treatment at Walter Reed Army Medical Center and the National Naval Medical Center in Bethesda, Md., during congressional recesses so she wouldn't miss votes in Congress.