Bueso is one of many children from foreign countries who are here for life-saving medical treatment. The Trump administration has ordered them to leave.
August 30, 2019

Rachel Maddow is not letting go of the story that children with rare diseases who are being treated in the U.S. have been given 33 days to leave the U.S.

In letters reviewed by The New York Times, Ms. Bueso, her family and other deferred action applicants were told that requests would be considered only from people who are in the military, and that the authorities would “commence removal proceedings” against those who did not leave the country.

University of California San Francisco Benioff Children's Hospital‎ has been treating a young Guatemalan woman named Isabel Bueso since she was seven years old as part of clinical trials for a rare genetic disease. It will be impossible for her to get this treatment in her home country, Dr. Paul Harmatz told Maddow.

"We're really handing her a death sentence. It's as if we're pulling the plug on a respirator or stopping feedings," he said bluntly. "We have really devastated this family."

Harmatz, a pediatric gastroenterologist, praised Isobel's family for moving to the U.S. for these clinical trials that will help children around the world and says they couldn't have done it without her.

Can you help us out?

For 17 years we have been exposing Washington lies and untangling media deceit, but now Facebook is drowning us in an ocean of right wing lies. Please give a one-time or recurring donation, or buy a year's subscription for an ad-free experience. Thank you.

Discussion

New Commenting System

Our comments are now powered by Insticator. In order to comment you will need to create an Insticator account. The process is quick and simple. When registering you will also be presented with the option to tie all your old Disqus comments to your new Insticator account. Please note that the ability to comment with a C&L site account is no longer available.

We welcome relevant, respectful comments. Any comments that are sexist or in any other way deemed hateful by our staff will be deleted and constitute grounds for a ban from posting on the site. Please refer to our Terms of Service (revised 3/17/2016) for information on our posting policy.